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Brain Tumor Surveillance
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CBTRUS is very proud to reprint this announcement from Cleveland Crain’s. Dr. Barnholtz-Sloan has been the Scientific Principal Investigator for CBTRUS since 2012. Under her scientific leadership, CBTRUS has published Statistical Reports as Supplements to Neuro-Oncology, the journal of the Society for Neuro-Oncology and has made numerous contributions to the descriptive epidemiology of brain and other nervous system tumors. Along the way she has encouraged and mentored many young investigators. She is truly a Notable Woman in STEM!

CBTRUS Scientific Principal Investigator Jill Barnholtz-Sloan, PhD recognized by Cleveland Crain’s as a Notable Woman in STEM. (reprint) Jill Barnholtz-Sloan, PhD was recently recognized by Cleveland Crain’s in their issue featuring Notable Women in STEM. The special issue on women in Science, Technology, Engineering and Mathematics profiled many academic, research and civic leaders across the greater Cleveland area.

Dr. Barnholtz-Sloan, is a multi-disciplinary researcher trained in biostatistics, population genetics and human genetics. She is the Sally S. Morley Designated Professor in Brain Tumor Research with the Department of Population and Quantitative Health Sciences and Associate Director for Bioinformatics/Translational Informatics with the Case Comprehensive Cancer Center and the Cleveland Institute for Computational Biology.

Her research, which spans more than two decades, currently focuses on sex differences in brain tumor incidence and outcomes.

In addition to her own work, she advises colleagues across CWRU and University Hospitals in developing and analyzing big data research across multiple clinical and research areas. She also directs the School of Medicine’s Cleveland Center for Health Outcomes Research (CCHOR). For UH, she serves as Director, Research Health Analytics and Informatics.

The Brain Tumor Epidemiology Consortium (BTEC) announced its 21st conference entitled "Brain Tumor Disparities:  From Biology to Social Determinants" to be held in Los Angeles, California, June 5th-7th, 2019. Information can be found on Abstracts are due March 15, 2019. CBTRUS President Carol Kruchko is the current Secretary of BTEC.

The International Brain Tumor Alliance (IBTA) announced its 2019 Fourth Biennial World Summit of Brain Tumour Patient Advocates to be held at the National Cancer Institute (NCI), National Institutes of Health (NIH), in Bethesda, Maryland, October 9-12, 2019.  CBTRUS President Carol Kruchko is a member of the IBTA Advisors.


The CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2011-2015 was published online in September 2018 and in print in October 2018. Members of the Society for Neuro-Oncology received the Report with their October Neuro-Oncology issue. A notice was sent to the cancer surveillance and registration community via the North American Association of Cancer Registries LIST-Serv. A link can be found under Reports and Tables on this website.

CBTRUS began the third year of its three year contract with the Centers of Disease Control and Prevention, Contract No. 2016-M-90304 September 30, 2018- September 29, 2019, Enhanced Data Collection, Evaluation, and Analysis of Brain and Central Nervous System Malignant and non-Malignant Tumors. CBTRUS sub-contracts with Case Western Reserve University under the leadership of Jill Barnholtz-Sloan, Ph.D. for the brain tumor analyses required under the contract.

CBTRUS President Carol Kruchko exhibited during the American Brain Tumor Association Patient and Family Conference:  45 Years of Redefining Survivorship, August 3-4, 2018, Rosemont, Illinois. The sessions include presentations from clinicians and professionals treating patients with an emphasis on quality of life for both patients and caregivers.

CBTRUS entered into a Contract No. HHSN261201800176P with The National Cancer, Institute Neuro-Oncology Branch, February 15, 2018 – March 15, 2019 to provide a publication ready scientific manuscript addressing the twelve rare brain tumors of the RT-PEN project, utilizing data from CBTRUS.

The CBTRUS petition to include the biomarkers found in the 2016 WHO Classification of Tumours of the Central Nervous System was approved by the Uniform Data Standards Committee of the North American Association of Central Cancer Registries.  Collection will begin in January 2018.